Thursday, May 13, 2010

blog information

We are nearing the end of another school year yeah I love summer time and still being out of work I can spend the summer home with the kids.

After being laid off at work my friend talked me into to starting a blog about the daily struggles that face me and the family with Jaren's disease I am not very good at keeping up with blogs but this one is almost like a journal type thing and when I get frustrated I can go type on the blog and vent, I also want it to be a tool to educate people and raise awareness about metachromatic leukodystrophy. If you would like to take a look, the web address for it is www.dailystruggleswithmld.blogspot.com. Let me know what you think. I feel that the more people know about this disease the better.

Sunday, February 28, 2010

update on the Gordon's

I haven't updated for a long time so I thought I would take a minute and catch everyone up on our lives.
Jaren is doing ok everyday brings new challenges for him and for me. I was laid off work last month it was devastating at first and now I realize it was a blessing in disguise. I have been able to be home more and enjoy my family. Jaren is to a point now where he should not be left alone and losing my job made me realize that. The kids have excelled in school since I have been out of work and they are so much happier.
A couple of weeks ago we were able to go on a mother/son father/daughter date it was so much fun. Jaren and the girls went and saw Princess and the Frog and Jaren said it reminded him a lot of his mission it was based in Louisiana. Braxton and I were able to go to the Nickelcade and he really enjoyed playing games with me.